Support Groups & Organisations

Here at OurTNBC, we provide personalised support for your situation. We want to make sure the services and support we provide makes your health journey easier to navigate. Below is a list of other supportive groups and organisations for you to use in a way that helps you the most. We don’t want you to feel alone. We are always here for you.

Organisations

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Australian Breast Cancer Research is dedicated to supporting medical research focused on the prevention, detection, management and treatment of breast cancer.

“Research gives us all hope, and that is so important”

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ACRF’s mission is to back brilliant research by giving scientists the technology and equipment they need to find new and improved ways to prevent, detect and treat all types of cancer.

“ACRF helps ensure cancer researchers have access to state-of-the-art equipment and technologies”

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Breast Cancer Network Australia (BCNA) is Australia’s leading breast cancer consumer organisation. We have worked tirelessly to ensure that all Australians who are affected by breast cancer receive the very best care, treatment and support.

“Really comprehensive information about breast cancer. I found it a very helpful resource.”

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Breast Cancer Trials (BCT) is a group of world-leading breast cancer doctors and researchers based in Australia and New Zealand with a commitment to exploring and finding better treatments for people affected by breast cancer through clinical trials research.

“Clinical trials are a vital step to bring new treatments to breast cancer patients.”

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Cancer Chicks is a community hub for young women navigating cancer and other terminal or chronic illnesses.

“They hold weekend trips away – it’s your crowd – they get “you”… I’m too old but they were welcoming anyway! (because I don’t feel my age – I feel 30!)”

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Cancer Council is a charity that works across every area of cancer, from research to prevention and support, and works across all of Australia.

“While not breast cancer specific, the Cancer Council provides so much helpful information, particularly around additional cancer support and services”

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Carers Couch supports unpaid carers to make caring more manageable. Whatever you need, we can guide and connect you to services, solutions and emotional or community support.

“Unpaid carers – spouses, partners, mums, dads, children – often go unnoticed, but the emotional and mental toll on them after a loved one’s cancer diagnosis can be huge. Carers Couch provides them with the support they need”

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Counterpart connects, supports and informs women living with cancer to live well. Our trained and experienced Peer Support Volunteers understand what it is like to be a woman who has cancer, as they have had a cancer diagnosis themselves.

“It’s so helpful to be able to speak with someone who ‘gets’ what you’re going through. It made me feel far less alone.”

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Dragons Abreast is a special group of breast cancer survivors and supporters. It is a dragon boat club that has a proud history of offering a supportive and understanding environment to breast cancer survivors.

“Dragons abreast helped me find a tribe and get out into the fresh air – even when I felt sorry for myself. I found having someone “check in on me” who had done TNBC amazing.”

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Jean Hailes for Women’s Health is a national not-for-profit organisation dedicated to improving women’s health across Australia through every life stage.

“Covering all aspects of women’s health, a super useful site to refer to”

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Look Good Feel Better is a non-medical, brand-neutral public service program that teaches beauty techniques to people with cancer to help them manage the appearance-related side effects of cancer treatment.

“Helped me find eyebrows and eyelashes (with a pencil) when I’d never been a makeup person before and couldn’t draw to save myself! They sent masses of skin care and makeup in a kit and a workshop to teach me also.”

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A charity funding McGrath Breast Cancer Nurses in communities right across Australia. There are currently 185 McGrath Breast Care Nurses, who help individuals and their families experiencing breast cancer by providing physical, psychological and emotional support, for free.

“An invaluable resource. A go-to source for EVERYTHING!”

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A charity providing practical support for mums of children under 13, while they are receiving treatment for cancer.

“They contacted me to find out what resources I would like to access and how best to do so. We have received care packages, vouchers and the amazing teddy bears for kids that record your voice!”

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The National Breast Cancer Foundation (NBCF) is Australia’s leading national body funding game-changing breast cancer research with money raised entirely by the Australian public.

“Highly recommended!”

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The PINC & STEEL cancer rehabilitation programs provide a full range of services designed to look after women, men and young people recovering from cancer surgery or cancer treatments.

“Awesome rehab people have helped me have great shoulder function even with post-radio contracture. I also discovered paddle boarding with like-minded people.”

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Pink Hope is a preventative health hub that gives our community the tools to assess, manage and reduce their risk of breast and ovarian cancer, while also providing personalised support for at-risk women.

“Helped me to understand the genetics and the risks with the genetics. They run events online and in person. Their podcast – The Empowered Patient – helped me to speak up!”

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A charity for young women with breast cancer, So Brave’s mission is to empower young women diagnosed with breast cancer, raise awareness in young women to be #breastaware, educate young women, and fundraise for breast cancer research.

“Getting breast cancer so young was tough. But So Brave helped me find other women like me”

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Think Pink provides direct emotional, practical and physical support through a comprehensive range of programs offered at its unique wellness centre called The Living Centre.

“My breast cancer diagnosis shattered my self-confidence. Think Pink and The Living Centre helped me regain it.”

Online Support Groups

Advocates

Finding a like-minded human who understands what you’re going through even if it’s through an outlet like instagram, can make all the difference. We have found some to make searching easier, but there is a whole community out there…

If you find someone else we should know about contact us

Missing resources?

If you would like us to review and include any resources, Facebook pages or support groups, please let us know.

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Glossary of Key Terms

These are explanations of terms that medical professionals and others may use when discussing your TNBC.

Advanced breast cancer

A commonly used term for secondary, metastatic or stage 4 breast cancer

Adjuvant therapy/treatment

Treatment (e.g. chemotherapy) given after surgery.

Alopecia

Hair loss

Areola

The area around the nipple

Axillary dissection/clearance

The removal of some or all of the lymph nodes from the armpit to see if the breast cancer has spread beyond the breast.

Benign

Not cancerous

Biopsy

The removal of cells or tissue from the body to see if they are cancer cells

BRCA1 and BRCA2

Women with a fault, or mutation, in one of these genes have a higher than normal chance of developing breast or ovarian cancer

Breast conserving surgery

Surgery to remove breast cancer and a small area of healthy tissue around the cancer. Also known as lumpectomy.

Chemotherapy

Treatment for cancer using drugs

Clinical trials

Studies involving patients to see if a new treatment is better than an existing one

Complementary medicines

Complementary medicines are products that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies). Complementary medicines include vitamin and mineral supplements, such as fish oil capsules or vitamin D tablets, and herbal medicines.

Complementary therapies

Complementary therapies are practices that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies).Some examples of complementary therapies often used by women with breast cancer include massage, yoga, acupuncture and reflexology.

Double mastectomy

Removal of both breasts during breast cancer surgery

Ductal Carcinoma In Situ (DCIS)

Non-invasive breast cancer confined to the ducts of the breast

Early breast cancer

Breast cancer that has not spread beyond the breast or lymph nodes under the arm

Early menopause

Menopause occurring in women under 45 years of age. Early menopause is often a side effect of some common treatments for breast cancer.

Lymph nodes

Glands in the armpit and other parts of the body that filter and drain lymph fluid, trapping bacteria, cancer cells and any other particles that could be harmful to the body

Lymphoedema

A condition that sometimes develops when lymph nodes have been removed during breast cancer surgery and the lymph fluid no longer drains freely, causing swelling in the arm, hand or breast

Lumpectomy

Another name for breast conserving surgery

Mastectomy

The removal of the whole breast during breast cancer surgery

Metastatic breast cancer

Another term for secondary, advanced, or stage 4 breast cancer

Multidisciplinary Team

Often abbreviated to MDT. A team of health professionals who work together to manage a patient’s treatment and care

Neoadjuvant chemotherapy

Chemotherapy treatment given before breast cancer surgery (sometimes used to reduce the size of the tumour to make it easier for the surgeon to operate)

Oestrogen

A type of female hormone

Partial mastectomy

Another term for breast conserving surgery

PBS (Pharmaceutical Benefits Scheme)

A scheme funded by the Australian Government to subsidise the cost of certain drugs for eligible consumers

Progesterone

A type of female hormone

Radiotherapy

Treatment for cancer using X-rays that target a particular area of the body

Secondary breast cancer

Breast cancer that has spread from the breast to other, more distant parts of the body, most commonly the bones, lungs, liver and sometimes the brain. Also known as advanced, metastatic, or stage 4 breast cancer.

Sentinel node biopsy

identification and removal of the first lymph node to which the breast cancer may have spread for testing by a pathologist

Seroma

Fluid that collects in or around a scar after surgery

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