Resources Library

Here at OurTNBC, our aim is to provide up-to-date, educational information for every step of your health journey. That’s why we’ve curated from local and global breast cancer organisations helpful resources, from websites to podcasts, downloadable resources and videos.

Explore the links below to further your research and learning and explore our blog for more information on TNBC.

Lived Experience

The stories in our Lived Experience docu-series are told by members of the OurTNBC Working Group. We hope you will find their shared experience helpful, and hopeful, whether you are a patient, carer or loved one of someone with triple negative breast cancer.

Resources

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Podcasts
Publications
Videos & Webinars
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All BCNA webcasts

Videos & Webinars
OurTNBC - healthDirect

Australian mental health services

HealthDirect provides a helpful summary of the different types of mental health services across Australia, and how to access them.

Publications
OurTNBC - BCNA Episode 16

BCNA Episode 16: Young Women and Triple Negative Breast Cancer 

Dimity Paul was 31 when she was diagnosed. Joining host Kellie Curtain to talk candidly about TNBC, her breast cancer journey with her own mother and how her recovery felt like a second round of puberty.

Podcasts
OurTNBC - Black Breast Cancer

Black Breast Cancer – Podcast 4 Triple Negative Breast Cancer

Triple-Negative Breast Cancer can be heavily associated with Black Women, this podcast discusses potential reasons why.

Podcasts
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Breast Cancer Conversations – What is Triple Negative Breast cancer? Kelly Thomas Interview

Interview with Kelly Thomas, a breast cancer survivor who was diagnosed with Stage 3C TNBC.

Podcasts
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Bree Sandlin: Stage Three Triple-Negative Breast Cancer Patient at MD Anderson

Videos & Webinars
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Cancer Care Guides

The Cancer Council’s publication Breast Cancer: Your guide to best cancer care is available to download in multiple languages

Publications
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CancerCare Connect Workshop: Triple Negative Breast Cancer

This workshop talks about TNBC and the fear of recurrence.

Podcasts
OurTNBC - Chandra Dattanis story

Researchers Under the scope – Chandra Dattani’s story

Chandra Dattani was diagnosed with triple negative breast cancer, even though her husband, a physician, found very little information about therapies or drugs that could heal her. Chandra Dattani and her family decided to fight back. They established the Chandra Dattani Memorial Fund in 2010 to support critical cancer research on an annual basis.

Podcasts
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Support and Information for Carers

Help and support can help make the life of a carer easier. The Cancer Council has produced a summary of Australia services that can support carers of people living with cancer.

Publications
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Support your Girls

Shonel Bryant was diagnosed with triple negative breast cancer twice by the age of 38. She recorded a beautiful and powerful docu series called “Life on Standby” to share the intimacies of cancer through her eyes

Videos & Webinars
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Surviving Breast Cancer, Hashimoto’s Disease and Rapid Weight Loss by Stormy Coelho

Chat with Stormy Coelho about her triple negative breast cancer story as well as other diseases that she has survived. Stormy talks about the different types of breast cancer, the importance of staying on top of your health and getting things checked right away.

Podcasts
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The Impatient Podcast

Our patient conversation this week is with Molly Clayton, who shares her very recent experience of finding – and eventually, being diagnosed with – breast cancer. Molly joins us from an emergency room to talk missed diagnoses, the power imbalance in medicine, and the simple act of just doing the test!

Podcasts
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Triple Negative Breast Cancer Foundation Webinars

This US-based organisation has a large collection of interesting webinars about triple negative breast cancer.

Videos & Webinars
Start typing to see posts you are looking for.

Glossary of Key Terms

These are explanations of terms that medical professionals and others may use when discussing your TNBC.

Advanced breast cancer

A commonly used term for secondary, metastatic or stage 4 breast cancer

Adjuvant therapy/treatment

Treatment (e.g. chemotherapy) given after surgery.

Alopecia

Hair loss

Areola

The area around the nipple

Axillary dissection/clearance

The removal of some or all of the lymph nodes from the armpit to see if the breast cancer has spread beyond the breast.

Benign

Not cancerous

Biopsy

The removal of cells or tissue from the body to see if they are cancer cells

BRCA1 and BRCA2

Women with a fault, or mutation, in one of these genes have a higher than normal chance of developing breast or ovarian cancer

Breast conserving surgery

Surgery to remove breast cancer and a small area of healthy tissue around the cancer. Also known as lumpectomy.

Chemotherapy

Treatment for cancer using drugs

Clinical trials

Studies involving patients to see if a new treatment is better than an existing one

Complementary medicines

Complementary medicines are products that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies). Complementary medicines include vitamin and mineral supplements, such as fish oil capsules or vitamin D tablets, and herbal medicines.

Complementary therapies

Complementary therapies are practices that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies).Some examples of complementary therapies often used by women with breast cancer include massage, yoga, acupuncture and reflexology.

Double mastectomy

Removal of both breasts during breast cancer surgery

Ductal Carcinoma In Situ (DCIS)

Non-invasive breast cancer confined to the ducts of the breast

Early breast cancer

Breast cancer that has not spread beyond the breast or lymph nodes under the arm

Early menopause

Menopause occurring in women under 45 years of age. Early menopause is often a side effect of some common treatments for breast cancer.

Lymph nodes

Glands in the armpit and other parts of the body that filter and drain lymph fluid, trapping bacteria, cancer cells and any other particles that could be harmful to the body

Lymphoedema

A condition that sometimes develops when lymph nodes have been removed during breast cancer surgery and the lymph fluid no longer drains freely, causing swelling in the arm, hand or breast

Lumpectomy

Another name for breast conserving surgery

Mastectomy

The removal of the whole breast during breast cancer surgery

Metastatic breast cancer

Another term for secondary, advanced, or stage 4 breast cancer

Multidisciplinary Team

Often abbreviated to MDT. A team of health professionals who work together to manage a patient’s treatment and care

Neoadjuvant chemotherapy

Chemotherapy treatment given before breast cancer surgery (sometimes used to reduce the size of the tumour to make it easier for the surgeon to operate)

Oestrogen

A type of female hormone

Partial mastectomy

Another term for breast conserving surgery

PBS (Pharmaceutical Benefits Scheme)

A scheme funded by the Australian Government to subsidise the cost of certain drugs for eligible consumers

Progesterone

A type of female hormone

Radiotherapy

Treatment for cancer using X-rays that target a particular area of the body

Secondary breast cancer

Breast cancer that has spread from the breast to other, more distant parts of the body, most commonly the bones, lungs, liver and sometimes the brain. Also known as advanced, metastatic, or stage 4 breast cancer.

Sentinel node biopsy

identification and removal of the first lymph node to which the breast cancer may have spread for testing by a pathologist

Seroma

Fluid that collects in or around a scar after surgery

Suggestions for OurTNBC?

If you’re a patient, patient organisation, carer or healthcare professional, please let us know if you have any feedback or suggestions for our site.


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