Stay up-to-date with the latest in TNBC news, research, personal stories, wellbeing and more.

Morning Walk

Dealing with Recovery and Fear

Your treatment is over, but life hasn't returned to normal. You’re scared it might come back. It doesn't matter how long it's been since treatment; fear is normal for cancer patients.1 You may feel like you've lost control, but there are ways to take it back. I’ve changed my life since I got Triple Negative Cancer at 33. My body had been ...

Continue reading

Header image

TNBC and your career

By Elise Sproll You’ve taken years to build your career and you don't want cancer to take that away. You know you’ll need to slow down, but you still need to pay bills. Most women decrease their workload by 50% during cancer treatment while paying their bills and out of pocket treatment expenses.1 So how can you continue your career and work...

Continue reading

WhatsApp Image 2021-10-08 at 6.40.36 PM

Changes to appearance

Current treatments for TNBC can cause dramatic changes to your appearance. As a group, many of us felt completely unprepared for the changes we were to face.We are sharing our experiences here so that you have an idea of what to expect and - importantly - to show that you will come through the other side.You may find some of our experiences and pho...

Continue reading


Stormy’s story

Stormy, a member of the OurTNBC Working Group, was diagnosed with triple negative breast cancer on 23 August 2021. In a series of blog posts, Stormy recounts her experience from the moment she found a lump on her breast, her experience of treatment and its side effects, and her work to raise awareness of TNBC: Suspicious, Part 1: https://vocal.m...

Continue reading

parenting through cancer

Parenting through cancer

Real life experiences    Pamela’s story - parenting through cancer  they diagnosed me with breast cancer in 2021. My mother had also survived cancer years before and as soon as I felt the lump, I knew what it was. The doctors also found a lump in my armpit and just after my 38th birthday, they diagnosed me with stage 3 triple negative breas...

Continue reading

Start typing to see posts you are looking for.

Glossary of Key Terms

These are explanations of terms that medical professionals and others may use when discussing your TNBC.

Advanced breast cancer

A commonly used term for secondary, metastatic or stage 4 breast cancer

Adjuvant therapy/treatment

Treatment (e.g. chemotherapy) given after surgery.


Hair loss


The area around the nipple

Axillary dissection/clearance

The removal of some or all of the lymph nodes from the armpit to see if the breast cancer has spread beyond the breast.


Not cancerous


The removal of cells or tissue from the body to see if they are cancer cells


Women with a fault, or mutation, in one of these genes have a higher than normal chance of developing breast or ovarian cancer

Breast conserving surgery

Surgery to remove breast cancer and a small area of healthy tissue around the cancer. Also known as lumpectomy.


Treatment for cancer using drugs

Clinical trials

Studies involving patients to see if a new treatment is better than an existing one

Complementary medicines

Complementary medicines are products that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies). Complementary medicines include vitamin and mineral supplements, such as fish oil capsules or vitamin D tablets, and herbal medicines.

Complementary therapies

Complementary therapies are practices that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies).Some examples of complementary therapies often used by women with breast cancer include massage, yoga, acupuncture and reflexology.

Double mastectomy

Removal of both breasts during breast cancer surgery

Ductal Carcinoma In Situ (DCIS)

Non-invasive breast cancer confined to the ducts of the breast

Early breast cancer

Breast cancer that has not spread beyond the breast or lymph nodes under the arm

Early menopause

Menopause occurring in women under 45 years of age. Early menopause is often a side effect of some common treatments for breast cancer.

Lymph nodes

Glands in the armpit and other parts of the body that filter and drain lymph fluid, trapping bacteria, cancer cells and any other particles that could be harmful to the body


A condition that sometimes develops when lymph nodes have been removed during breast cancer surgery and the lymph fluid no longer drains freely, causing swelling in the arm, hand or breast


Another name for breast conserving surgery


The removal of the whole breast during breast cancer surgery

Metastatic breast cancer

Another term for secondary, advanced, or stage 4 breast cancer

Multidisciplinary Team

Often abbreviated to MDT. A team of health professionals who work together to manage a patient’s treatment and care

Neoadjuvant chemotherapy

Chemotherapy treatment given before breast cancer surgery (sometimes used to reduce the size of the tumour to make it easier for the surgeon to operate)


A type of female hormone

Partial mastectomy

Another term for breast conserving surgery

PBS (Pharmaceutical Benefits Scheme)

A scheme funded by the Australian Government to subsidise the cost of certain drugs for eligible consumers


A type of female hormone


Treatment for cancer using X-rays that target a particular area of the body

Secondary breast cancer

Breast cancer that has spread from the breast to other, more distant parts of the body, most commonly the bones, lungs, liver and sometimes the brain. Also known as advanced, metastatic, or stage 4 breast cancer.

Sentinel node biopsy

identification and removal of the first lymph node to which the breast cancer may have spread for testing by a pathologist


Fluid that collects in or around a scar after surgery

Suggestions for OurTNBC?

If you’re a patient, patient organisation, carer or healthcare professional, please let us know if you have any feedback or suggestions for our site.