Australian Breast Cancer Research is dedicated to supporting medical research focused on the prevention, detection, management and treatment of breast cancer.
“Research gives us all hope, and that is so important”
Here at OurTNBC, our aim is to provide up-to-date, educational information for every step of your health journey. That’s why we’ve curated from local and global breast cancer organisations helpful resources, from websites to podcasts, downloadable resources and videos.
Explore the links below to further your research and learning and explore our blog for more information on TNBC.
Navigating TNBC can be overwhelming, but you don’t have to do it alone. This section connects you with organisations and online support groups that offer specialised resources, community support, and expert guidance tailored to your specific needs.
These additional resources provide comprehensive support across various aspects of the TNBC experience, from diagnosis to survivorship, and include specific services for patients, carers, and families. They complement the previously listed resources and further enhance the support available to TNBC patients in Australia.
Information Support: So Brave provides educational resources tailored for young women, helping them understand the unique challenges they may face with a TNBC diagnosis.
Emotional Support: They offer peer support networks specifically for young women, including those living with metastatic breast cancer, providing a space to share experiences and receive support.
Practical Services: So Brave raises awareness through initiatives like the So Brave Model Project, which connects young women with breast cancer and offers empowerment through participation in awareness campaigns.
Accessing Services: Visit the So Brave website for more information on their support networks and awareness projects. You can also connect with their community through social media platforms
Counterpart is a Victorian-based service that connects, supports, and informs women with breast or a gynaecological cancer. Their services are free and confidential, making them an excellent resource for TNBC patients.
Information Support: Counterpart offers evidence-based information on TNBC, including treatment options and managing side effects. They also have a comprehensive library with resources on various aspects of breast cancer care.
Emotional Support: They provide peer support services, where women with TNBC can talk to trained volunteers who have had a similar experience. They also offer wellness programs like yoga and meditation.
Practical Services: Counterpart runs educational seminars, workshops, and online webinars that cover topics such as nutrition, exercise, and mental health for cancer patients.
Accessing Services: Visit the Counterpart website to explore their services, join a support group, or attend a workshop. You can also access their library of resources online.
Inherited Cancers Australia supports the inherited cancer risk community by offering a range of personalised community and professional services to help people better understand their options.
Ask Our Specialists: you can reach out to one of Inherited Cancers Australia’s Specialist Nurses or ask a question about genetic testing.
Peer Support Program: trained Peer Support Mentors provide tailored support by sharing evidence-based information, resources, practical tips, and personal insights without offering medical advice to help you confidently navigate your high-risk journey.
Online Support Groups: If you live too far from an in-person event, or just need a safe and supportive environment from the comfort of your home, Inherited Cancers Australia’s closed and private online support groups are a great way to connect with people who are going through the same worries, treatments, and recovery as you.
Finding a like-minded person who understands what you’re going through even if it’s through an outlet like Instagram, can make all the difference. We have found some to make searching easier, but there is a whole community out there…
If you find someone else we should know about, please contact us.
This site is tailored to meet you where you are, offering practical resources, personal stories, insights, and more—all in one easy-to-navigate space. By choosing the stage relevant to you, the information available on this site will be tailored to you.
These are explanations of terms that medical professionals and others may use when discussing your TNBC.
Advanced breast cancer
A commonly used term for secondary, metastatic or stage 4 breast cancer
Adjuvant therapy/treatment
Treatment (e.g. chemotherapy) given after surgery.
Alopecia
Hair loss
Areola
The area around the nipple
Axillary dissection/clearance
The removal of some or all of the lymph nodes from the armpit to see if the breast cancer has spread beyond the breast.
Benign
Not cancerous
Biopsy
The removal of cells or tissue from the body to see if they are cancer cells
BRCA1 and BRCA2
Women with a fault, or mutation, in one of these genes have a higher than normal chance of developing breast or ovarian cancer
Breast conserving surgery
Surgery to remove breast cancer and a small area of healthy tissue around the cancer. Also known as lumpectomy.
Chemotherapy
Treatment for cancer using drugs
Clinical trials
Studies involving patients to see if a new treatment is better than an existing one
Complementary medicines
Complementary medicines are products that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies). Complementary medicines include vitamin and mineral supplements, such as fish oil capsules or vitamin D tablets, and herbal medicines.
Complementary therapies
Complementary therapies are practices that are used in addition to conventional medical treatments (e.g. chemotherapy and hormone therapies).Some examples of complementary therapies often used by women with breast cancer include massage, yoga, acupuncture and reflexology.
Double mastectomy
Removal of both breasts during breast cancer surgery
Ductal Carcinoma In Situ (DCIS)
Non-invasive breast cancer confined to the ducts of the breast
Early breast cancer
Breast cancer that has not spread beyond the breast or lymph nodes under the arm
Early menopause
Menopause occurring in women under 45 years of age. Early menopause is often a side effect of some common treatments for breast cancer.
Lymph nodes
Glands in the armpit and other parts of the body that filter and drain lymph fluid, trapping bacteria, cancer cells and any other particles that could be harmful to the body
Lymphoedema
A condition that sometimes develops when lymph nodes have been removed during breast cancer surgery and the lymph fluid no longer drains freely, causing swelling in the arm, hand or breast
Lumpectomy
Another name for breast conserving surgery
Mastectomy
The removal of the whole breast during breast cancer surgery
Metastatic breast cancer
Another term for secondary, advanced, or stage 4 breast cancer
Multidisciplinary Team
Often abbreviated to MDT. A team of health professionals who work together to manage a patient’s treatment and care
Neoadjuvant chemotherapy
Chemotherapy treatment given before breast cancer surgery (sometimes used to reduce the size of the tumour to make it easier for the surgeon to operate)
Oestrogen
A type of female hormone
Partial mastectomy
Another term for breast conserving surgery
PBS (Pharmaceutical Benefits Scheme)
A scheme funded by the Australian Government to subsidise the cost of certain drugs for eligible consumers
Progesterone
A type of female hormone
Radiotherapy
Treatment for cancer using X-rays that target a particular area of the body
Secondary breast cancer
Breast cancer that has spread from the breast to other, more distant parts of the body, most commonly the bones, lungs, liver and sometimes the brain. Also known as advanced, metastatic, or stage 4 breast cancer.
Sentinel node biopsy
identification and removal of the first lymph node to which the breast cancer may have spread for testing by a pathologist
Seroma
Fluid that collects in or around a scar after surgery
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